ADHD in the UK

#61

Hello Violet, if your around later ive setup a discord server chat for the ADHD brief im working on, got an appointment with my MP on 15/03 the momemtum is picking up and info ive gathered from parliament is shocking.
I cant write it down as its quite alot and some is i quote upsetting well to me it was i will putt a invite to the group chat for you for later tonight if you can make i will be about im around most of the time anyway be back on in discord about 19.30.
Regards Andy


Yes i do need help as im getting overwelmed with work for it and that would help on the campaign​:wink::+1::wink::+1::wink::+1::wink::+1::wink::+1::wink::+1::wink::+1::wink::+1::wink:

1 Like
#62

Hiya i messaged you violet

#63

Thanks! I’m not on Discord but I’ll have a look at it tomorrow! :slight_smile:

#64

Thanks Violet
My messages were playing up and wasnt sure if u had recieved it.

#65

Aaaaargh that’s SO infuriating! Seems you are well aware of this but your GP is just straight up WRONG about this. Obviously I have no way of knowing whether or not you do have ADHD, but to insist that lack of focus and organisational skills are not signs of ADHD, and to dismiss it on the basis of you not having had serious problems with hyperactivity as a child, is just TOTAL BS.

It’s one thing for GPs not to have all of the up to date info on ADHD, but as gatekeepers to even getting an assessment they should really be willing to acknowledge what they don’t know, and listen to their patients! At the very least there are recognised screening questionnaires they can use, rather than just stubbornly repeating ancient myths!

Definitely ask to see another GP (I swear, there are good ones out there), and maybe take along a printout of the NICE guidance on recognition, identification, and referral for ADHD

Here’s what it says about adult ADHD (emphasis is mine):

1.2.10 Adults presenting with symptoms of ADHD in primary care or general adult psychiatric services, who do not have a childhood diagnosis of ADHD, should be referred for assessment by a mental health specialist trained in the diagnosis and treatment of ADHD, where there is evidence of typical manifestations of ADHD (hyperactivity/impulsivity and/or inattention) that:

  • began during childhood and have persisted throughout life
  • are not explained by other psychiatric diagnoses (although there may be other coexisting psychiatric conditions)
  • have resulted in or are associated with moderate or severe psychological, social and/or educational or occupational impairment.

Yes, there is overlap between symptoms of ADHD and many other conditions including depression, but if you don’t already have an actual psychiatric diagnosis for depression then I don’t see how your GP can decide in a 15 minute appointment that depression is 100% definitely a better explanation for your symptoms than ADHD :woman_shrugging:

This stuff is complicated and that’s why we need our GPs to refer us for assessment by a specialist. :rage:

2 Likes
#66

Hiya really good information in your message :+1::+1::+1::+1:

1 Like
#67

@violet,
So sorry to hear about your experience with this gp. I wish you all the best with your next steps.

2 Likes
#68

Thank you @Tiddlypops and @Lustforlife !

The NICE guidelines seem very helpful, I’ll definitely take them along next time!!

2 Likes
#69

Hi im Terry from ipswich 30

I am currently awaiting diagnosis and have been since july hoping it wont be much longer, feeling like jessica ted talks was saying, repeatedly failing at life.

Im getting divorced, i have changed my career things are just starting to look upand now i feel myself starting to let myself down again. Same problems, same screw ups, same anger/frustration, same boredom. Just want it to get easier !!!

Anyone wants to chat that would be great no one i know seems ro understand

Many thanks

Terry

1 Like
#70

Hi @Tez im Andy im 39yrs old and recently the same as you mate.
Welcome to the tribe mate there is someone normally here for a chat.
Or you will find me in discord online chat most afternoon and through the night online gaming.
Trust me theres a lot of understanding in here and BRAINS on the same wave length :wink:

#71

@Tiddlypops
Hiya i was in late last night sorry i missed you cpntact me on discord or facebook messenger my id is Andy wynn and your see my pic its the same :wink:

#72

I’m in Cheltenham, I’m 48 and I went to my doctor in November 2018, after seeing a video on YouTube about how to help people with ADHD and thinking to myself “this is me!” I think watched hours and hours of Jess on HOWTOADHD while crying almost the whole time!

I had to go in to answer a bunch of new questions in February 2019, and I’m now waiting for the next stage…

1 Like
#73

Hey John. Welcome Mate good stuff with it started well done

#74

Thanks, I can’t wait to see if the medication can help me move my life forward at last!

1 Like
#75

Hope it does and it will :slight_smile:

#76

I’m in Lincolnshire and after many years of dancing around symptoms that tie in with anxiety, depression (including post-natal), an addictive personality, mild OCD and a dietary-related autoimmune disorder, plus the after-effects of emotional neglect within a very mobile childhood and bullying in my teenage years, I really wanted to get to the bottom of WHY all these things were factors in my life and whether there was a common denominator.

So I did some research into adult ADHD (I was already aware of the basic condition and suspected that my daughter might be affected, and having discussed it with my mother it would appear it’s quite prevalent on her side of the family, with both her and at least two of her brothers displaying multiple ADHD traits) and found myself ticking “yes” to almost everything on the inattentive type list, plus more than a few in the mentally hyperactive bracket. I’ve watched several videos & listened to podcasts by people with ADHD and the parallels between their experiences and my own are quite extensive.

I’ve contacted my GP about it twice now; initially I was told that they do not offer any diagnosis pathway for adults with ADHD, but after some of the information people have given here I’ve emailed them again and asked if referral to an out of area specialist is a possibility. I was considering a private diagnosis but it’s really not financially viable for me, and if (as a few people have mentioned) it wouldn’t be accepted for prescriptions or further support on the NHS anyway it seems pretty pointless.

The degree of impairment on my life isn’t exactly negligible (most of the serious damage like a lower grade degree than I should have got, debt incurred, jobs ditched, relationships messed up etc has already been done) but over the years I’ve adapted to my brain’s way of operating and now just knowing that ADHD is the likely reason I think & behave the way I do is helping me drop some of the guilt and shame. It also helps that my husband is a Brain too (more hyperactive/impulsive than me which means we can trade off on the different things we each struggle with) and I have finally found a job with enough flexibility and stimulation that I’ve been able to stick with it for more than my standard 18-24 months!

But this does make me wonder how much use a diagnosis would actually be at this stage. Has anyone else managed to get through the process, get support or meds and found they’ve made a significant difference? What I’m mainly bothered about is the example I’m setting for my daughter; and I’d like to be able to be more consistent for her, remember to enforce boundaries so she doesn’t get confused and think they don’t matter, that kind of thing.

Anyway, sorry about the waffle.

2 Likes
#77

Well, parenting is hard anyway, so I don’t know how much the medications would help, but thry may help quite a bit on being able to focus on things without getting distracted. And having a diagnosis might help your daughter get one, since it can be quite hereditary. Especially if several of your family members seem to be on the spectrum too. And it might help take some of the stigma away for your daughter, although having a father with ADHD probably already helps with both. But girls and women getting diagnosed properly is sadly still not that common, so it would help your daughter (and other girls) if more women got diagnosed, to show that it’s not just ‘hyper-active boys in the schoolyard making trouble’ that can have ADHD.

But if you find the right medication and the right dosage, it should help daily life a bit, as you won’t get too distracted all the time, and would possibly help you complete tasks more readily. That might also set an example for your daughter, and show that medication isn’t something to be afraid of if it’s something she needs. It’s like taking vitamins, if your body doesn’t get it naturally, we top it up with what it needs.:blush:

1 Like
#78

That’s a really good way of putting it, thank you. I think my wariness around meds is partly because I’m hyper reactive to them (I have to take fairly small doses of even off-the-shelf painkillers or I end up with floaty side effects!) and partly because I feel like a fraud asking for them when I can manage my symptoms to at least functional level behaviourally for the most part (I’ve never had medication for my anxiety or depression for the same reason). I don’t want my daughter to end up the same way!

1 Like
#79

Well, I managed to get through a Master’s degree with around an A average grade and only got my diagnosis after, then started on medication. Being able to read withOUT being distracted by every little sound or movement around me was amazing…! And I’m a big guy, but only needed 30mg for minimum effective dose, although I’m slowly increasing to see if it gets better (by advice from the psychiatrist! Don’t do it alone), since I guess mine isn’t THAT severe(?), as he told me most have an effect at 20-50mg. But the pills come in 10mg form at least for Ritalin LA (extended release), and that’s what I started with. So if you talk to your psychologist/psychiatrist about the medications, you can probably mention that you tend to be sensitive to medications, so can you start on the lowest dose possible and increase it from there if possible? I’m sure they wouldn’t mind that at all.:blush:

1 Like
#80

Well, I went to see the doc and he was sympathetic but told me not to get my hopes up. Although my NHS trust does now recognise adult ADHD as A Thing, unless you were first diagnosed as a child you’re unlikely to get referred for medication or even NHS counselling - apparently they usually just recommend you get private counselling or coaching, which is kinda where I was anyway. Still waiting to hear anything back so I don’t know if I’ll even end up with a formal diagnosis, but knowledge has always been my sword and shield so on with the personal research!

In the meantime, does anyone have any alternative ways to address Rejection Sensitive Dysphoria? Apparently the meds they recommend in the USA have no chance of being prescribed here, especially to adults, and psychotherapy is of limited use from what I’ve read.

1 Like